Lack of information greatest
challenge of kidney problem
By AZOMA CHIKWE
Tuesday,
April 8, 2008
Research has shown that before many Nigerians know that they
are pre-disposed to renal failure, they already have it.
Disclosing this to newsmen, National Co-ordinator, Kidney
Support Association of Nigeria, Mr. Brent Akoman, said that
this is due to awareness and information deficit on kidney
disease in the country.
Akoman equally said there was no early intervention for kidney
disease in the country, and where there is, it is inadequate.
His words: “We find out that before some people in Nigeria
know that they are pre-disposed to renal failure, they already
have renal failure. So, if there is a way, and there should
be a way, to get the general public to understand that if
I feel this way, if I have this type of lifestyle, I am predisposed
to the disease. With this, people will make some adjustment,
make some changes, or get early intervention. These are ways
that can help. In other countries, there is enough information
about kidney disease.
“In our country, there is no early intervention for
kidney disease. If there is at all, it is inadequate. Early
intervention, I mean here, is when you are still having symptoms,
when you are attending a renal clinic or just going to the
hospital, and there is a possibility that you might go into
renal failure, there is no intervention to prevent that from
happening.
What I see it that from the time you are diagnosed to having
some kind of kidney disease or nephropathy generally to the
time you end up in dialysis machine, you are going down and
there is nothing to intervene, especially if the person is
at the early stages. Every medical personnel tells you that
early intervention gives you chances of cure. But in this
society, what I have seen is that from the beginning of symptom,
they manage you straight to when you lie on the bed and take
dialysis.
When you start finding protein in your urine, it is an indication
there is a problem. There is also degree, one, two or three.
There is a very high level. A lady was found to have three
counts of her protein in her urine, and she went abroad, she
got treated and she came back. No renal failure, no dialysis
and she is fine. Some people are found in the early stages
to have one count of their protein in their urine, they end
up in dialysis because there is no intervention.
“We are hoping, through this organisation, and with
the help of the public as we get the message across, we will
begin to have methods of intervention. That case actually
reverses the process before the patient goes down to dialysis.
“One other thing we hope to do here is to reduce mortality
rate among end-state renal disease sufferers. Generally, once
a patient is diagnosed to have renal failure, they condemn
them to death or they normally, usually die. What we are trying
to do is to work through this organisation and its partners
to reduce this rate of mortality among end-stage renal disease
sufferers, which means follow them effectively through dialysis
into a transplant.
“We also know that there’s no welfare system in
this country to support those who are disabled by illness.
In other societies, if you are disabled by your sickness,
no matter the nature of your sickness and you are no longer
able to work because of your disease or condition, you are
taken care of. At least you have the minimum support from
the system, so that you continue to maintain your lifestyle,
you continue to live. In this society, we don’t have
anything to help people who have renal failure.
“One of the goals of our Kidney Support Association
is to make treatment, which, in this case, is dialysis accessible
and affordable. When I was dialyzing my patient at Life Support,
I knew a lady who lived in Onitsha. Her nearest dialysis centre
was at University of Nigeria Teaching Hospital, Enugu. According
to her, from that region, people have to rush to the place,
say by 4 a.m, put their name on the list and then wait for
the place to open. Sometimes people spend the night or you
send someone ahead of you to go and put your name on the list,
so that when the place opened in the morning, they start from
the first name listed.
“For instance, you have six or nine patients listed,
the place has one working machine. The highest capacity of
the machine is to dialyse two patients on a day. So, you have
four patients who are listed who have to wait for another
day. Once there is a congestion in Enugu, like this, she comes
all the way from Onitsha to Life Support Medical Centre, Ikeja.
She boards a night bus.
“I want you to imagine the picture of renal patient
on a bus from Onitsha to Lagos so that they can dialyse in
the morning when they get to Lagos. Sometimes she has to spend
days in Lagos, but the owner of Life Support understands her
case, and when she had to stay over, a small room will be
prepared for her, and she might have to do another dialysis
before going back to Onitsha.
“So, that’s what we are looking at to make the
treatment accessible. In the 15 or 10 million people living
in Lagos. How many dialysis centres do we have?
And if we do have, how affordable is the treatment? We are
looking forward to working through Kidney Support Association
of Nigeria to bring this treatment closer to the people, making
it more accessible and attempt to make the cost a bit more
affordable.
|